Why MyTime Works for Me
A parent’s reflection of Kindred’s online MyTime peer groups
Being a parent of a child with disability, no two days are the same. It can be overwhelming at times, especially early on and as we navigate new phases such as starting preschool and school or getting an NDIS plan. But thankfully, whatever it is I’m experiencing, there is a parent who is either going through it with you or has been down this path before. This is why, for me, groups like MyTime are essential.
It’s a Time for Me
MyTime is a vital part of investing in my own well-being. I log on, every week or so, to have a chat, and usually feel as if a weight has been lifted at the end. I come off those calls armed with new tips, knowledge and sometimes just an outlet to chat with others who understand how confusing, chaotic, busy and beautiful life with our kids can be!
It’s Online
Kindred’s MyTime groups are held over Zoom, which means they are private. It’s really helpful for your first zoom call to keep your video on, this just means that the group gets to know you and helps form a level of trust. But once you have been going for a while, you can join without a video if you prefer.
There is no dress code. I’ve joined with my business clothes on, wine in hand, ready to relax and chat. I’ve also joined in my PJs, lying in bed with my headphones in, just listening to others.
You can contribute as much or as little as you like – some days I’ll chat away, others, I’ll just want to listen to and support others.
It’s a Place to Connect, Share and Learn
The conversations are often based on a topic, and there are regular guest speakers, meaning you can come along to those that are most relevant to your child and family. This could be sharing your child’s strenghts to learning about what supports are available for your family. It’s not uncommon for the conversation to veer in other directions depending on the needs of the group.
Some weeks the chats can be more thoughtful and reflective, many weeks, I find myself laughing, and the conversation is quite light – or a mixture of both.
Sometimes I join thinking I don’t have much to talk about or a particular worry to share and then find myself at the end speaking quite passionately about a topic. One thing is for sure, I am always glad when I have made an effort to join MyTime.
It’s a Safe and Welcoming Space
People drop in and out of the calls, sometimes interrupted by our children’s demands or pop on after it’s started – which is quite common when your child just won’t get to sleep! The Facilitators, all being parents to children with disability, are so understanding. I don’t feel bad if I’m a few minutes late or if I have to log off to tend to my child. When I can pop back there are always a couple of people on there chatting away.
I’ve made great friends and connections through MyTime. I don’t feel as lonely and isolated and it’s great to know there is a safe space I can turn to with people who get it.
Find out more about Kindred’s FREE online MyTime Groups or Register for an upcoming MyTime session.
When you register your interest, the zoom link will be emailed and if for some reason on the night, you can’t make it, it’s ok! Try again next week but one thing is certain – you will thank me when you do!
By Heather Cox
Heather is a mum of two girls, Erica (11) and Arianna (8) – the youngest was diagnosed with Sotos Syndrome. Heather and her husband AIberto, are proud parents, Iiving in the Inner West of Sydney. Heather is passionate about inclusion and making life better for people with disabilities and their families. She is particularly passionate about rare diseases and has helped set up and is an active committee member of the Sotos Syndrome Association of Australasia. She has big dreams for both her daughters and hopes that the world wiII be a better, more accepting pIace in the future for aII unique famiIies.